A few weeks ago we purchased an insulin pump for our 7 year old who has Type 1 Diabetes. After 5 years of multiple daily shots, he now gets his "site" changed every three days. (We still have to keep needles handy in case his pump fails.) It's a great tool in managing his Diabetes. We love it. And so does he. With supervision he understands what he needs to do to enter his blood sugar, enter his carbs and then bolus with the correct amount of insulin for what he has just eaten. In fact from the very first day he wanted to take control of his pump.
A blog I like to read posted this information on it today. It's great advice for families and friends of newly diagnosed Diabetics....
Diabetes Etiquette
- for people who don't have diabetes
1. Don't offer unsolicited advice about my eating or other aspects of diabetes. You may mean well, but giving advice about someones personal habits, especially when it's not requested, isn't very nice. Besides, many of the popularly held beliefs about diabetes ("you should just stop eating sugar") are out of date or just plain wrong.
2. Do realize and appreciate that diabetes is hard work. Diabetes management is a full-time job that I didn't apply for, didn't want and can't quit. It involves thinking about what, when and how much I ea, while also factoring in exercise, medication, stress, blood sugar monitoring, and so much more - each and every day.
3. Don't tell me horror stories bout your grandmother or other people with diabetes you have heard about. Diabetes is scary enough, and stories like these are not reassuring! Besides, we no know that with good management, odds are good you can live a long, healthy and happy life with diabetes.
I love #3. I can't tell you how many times people off the street give unsolicited advice about Potato's condition. Unless you are living in the situation you cannot fully show or express empathy regarding Diabetes. We REALLY don't want to hear horror stories. If a family member had cancer would you tell them all the stories you've heard about people being diagnosed and whether they survived or not? I sure hope NOT! The same goes for Diabetics, and their parents.